2003 World Record Set:
18 days, 4 hours, 51 minutes!
Mississippi River Challenge for
- May 10, 2003 6 AM to May 28, 10:51 AM 2003-
A 2,348 Mile Marathon to Support a Marathon of Research!
Guests of honor include:
Cliff Johnson, 19 years old.
Get together in New Orleans, Louisiana for a celebration dinner after this World Record attempt for Rett Syndrome and Leukodystrophy! Meet the paddlers and road crew - get your picture with them! Buy a T-shirt for research! Have a fun time while meeting the families who care for someone who has Rett syndrome or a Leukodystrophy! New Orleans dinner is being spear-headed by Desiree Loeb-Guth and she could use some help! Desiree has a daughter with Canavan Disease, and lives in the New Orleans area.
Please Contact Desiree Loeb-Guth directly if you would like to help organize this dinner, come to the dinner, donate food for the dinner, donate items to auction for research funds, help with a raffle, or would like to buy a raceT-shirt at the dinner! Dinner planned for June 1. Download the New Orleans Celebration Invitation!
Mississippi River Challenge
Team Hope and ....
Deductible donations can be designated to either the United Leukodystrophy
Foundation and/or the Rett Syndrome Research Foundation. *Every
Penny Goes to Research!