2003 World Record Set:
18 days, 4 hours, 51 minutes!

The Mississippi River Challenge for
Rett Syndrome & Leukodystrophy

- May 10, 2003 6 AM to May 28, 10:51 AM 2003-

A 2,348 Mile Marathon to Support a Marathon of Research!

Bob Bradford, forward position, Clark Eid, in the back, approaching L & D 24
New Orleans Dinner - June 1

Guests of honor include:

Lisette Guth, age 6.

Cliff Johnson, 19 years old.

Joshua Black

Tabitha Forsythe

Get together in New Orleans, Louisiana for a celebration dinner after this World Record attempt for Rett Syndrome and Leukodystrophy! Meet the paddlers and road crew - get your picture with them! Buy a T-shirt for research! Have a fun time while meeting the families who care for someone who has Rett syndrome or a Leukodystrophy! New Orleans dinner is being spear-headed by Desiree Loeb-Guth and she could use some help! Desiree has a daughter with Canavan Disease, and lives in the New Orleans area.

Please Contact Desiree Loeb-Guth directly if you would like to help organize this dinner, come to the dinner, donate food for the dinner, donate items to auction for research funds, help with a raffle, or would like to buy a raceT-shirt at the dinner! Dinner planned for June 1. Download the New Orleans Celebration Invitation!


The Mississippi River Challenge
An International Event to Raise Awareness and Research Funds for Rett Syndrome and Leukodystrophy
leMoynes Landing-New Orleans
Spanish Plaza at the Riverwalk
June 1, 2003 5-8p
Soul/R+B Sounds of Angela Myles and Friends
Raffle and Buffet dinner donated by a team of New Orleans philanthropists
Donation $25 (Cash Bar additional)

Welcome “Team Hope” and ....

Joshua Black, 6 Years old.
Joshua has a diagnosis of Metachromatic Leukodystrophy.
Tabitha Forsythe, 15 Years old.
Tabitha has a diagnosis of Rett Syndrome.
Clifford Johnson, 19 years.
Clifford has a diagnosis of Undiagnosed Leukodystrophy.
Lisette Guth, 6 Years old.
Lisette has a diagnosis of Canavan Disease.
David Cry, 35 Years old.
David has a diagnosis of Adrenomyeloneuropathy.

Tax Deductible donations can be designated to either the United Leukodystrophy Foundation and/or the Rett Syndrome Research Foundation. *Every Penny Goes to Research!

_$25 _$50 _$100 _ Other______________

Bring Donation or Mail Directly to:
MRC PO Box 221, 500 Pelican Ave. New Orleans, La. 70114
Name____________________ E-Mail_____________________
Address__________________ Phone________________________
Save me__tickets _ Sorry, can’t make it but here’s my donation, Good Luck!